Wednesday, March 12, 2014

Social Learning and Learning Disability

My human development class as been exposing me to the theories of Vygotsky and Bandura, and it finally dawns on my why ADHD is such a problem for someone already struggling with ASD. I suppose it's symptomatic of my own ASD tendencies that I've never considered social learning to be that important. The theories of Piaget and Chomsky have always seemed more compelling to me, that the unfolding of cognition is an inherent process. Relationships had a mysterious quality for me, like the notion that a relationship has a life of its own. It is strange for me to consider it a tool for learning. Of course the truth will lie somewhere in between for most people. There are other theories as well. I use cognitive behavior tools and speak of Maslow's hierarchy. I throw evolutionary explanations around on occasion. But if socialization is a learned process and learning is a challenge, where does that leave us?

Saturday, February 22, 2014

Broader Autism Phenotype

I came across this phrase today when I was raking pubmed for hits on progesterone and the brain. Well, first I'll post the link to an article about progesterone and autism: http://www.ncbi.nlm.nih.gov/pubmed/24485701 And here's an article from the 90's discussing BAP. http://ajp.psychiatryonline.org/data/Journals/AJP/3673/185.pdf The 90's is a long time ago, so I'm not sure if BAP is considered a thing or not. I guess I'll ask my sister.

Thursday, February 20, 2014

Preschool evaluation

In the peculiar yin and yang of raising kids with ASD, I spent my morning with a team of folks from the school district observing Cedar for special education preschool, and then I spent the afternoon driving my oldest to and from an interview for an Ivy League college. While in general he has a vocabulary of maybe 6 words, Cedar will do something surprising now and then like count his fingers or sing the last several bars of the sandman song. The language specialist at his evaluation yesterday thought he said "red car", even though I've never heard him using a noun or an adjective before. It's probably echolalia, but I guess you start somewhere. Spacepook had a song she used to butcher, and I think she may have been this age. It was a song from Barney, "Ha ha ha, Hee hee hee, come on get silly and laugh with me." She had the first part, but then it became "gwanaiooo." I think it was supposed to be "go on you." My sisters used to say "Oh come on!" a catchphrase from Tommy Boy. Spacepook would say "Oh, go on!" Like, on some level she knew that go and come were related meanings, but inverted it likely due to an autistic theory of mind. I also remember how she used to build a 25 piece puzzle upside down, relying on the shapes of the pieces rather than the pictures. It occurred to me this little parlor trick may be analogous to their acquisition of language. Perhaps all the features that are readily noticeable are just seem like noise, when the autistic child sees structure as the important thing.

Wednesday, January 1, 2014

Opioid Excess theory

I was surprised that my nutrition textbook said there was some evidence for Gluten Free Casein Free diet (GFCF). There are studies, though the methodology is disputed, especially by the pediatrics establishment. What I learned about it today makes me willing to try a dietary change for a few reasons. 1) As I understand it, we shouldn't need to be utterly GFCF to see any benefit, while a lot of the Gluten Free movement in society more generally makes a big stink that you can't have a speck or you're back to square one. I was not willing to eliminate gluten AND casein on this basis. But I can do my best to come up with alternative sources of carb, protein and calcium. 2) My kids' tuning out and retreating behavior is consistent with a concept of opioid excess. 3) Me and my middle child have a marked preference for sweets, also could indicate opioid sensitivity. It goes with the lability characteristic of ASD. In other news Cedar has been humming some recognizable tunes. We thought the Dr. Who song might be wishful thinking, but the Timmy Time recess tune was clearer and now he does the chorus of "I am a Child of God." What's interesting is these seem to be fairly complex.

Friday, November 1, 2013

We'll get there... when we get there

Cedar seems to be counting, which is super cute. He doesn't really talk, but he started chattering (it's like babbling but sounds purposive and has intonation to it, similar to spacepook though I'm not sure whether it was at the same age.) He has a few words at a time, like go and uh-oh, but as has been the case over the last year he has two or three at a time, then retires one to start saying something else. P.S. The counting sounds like "uh, doo, rhee, or." He counts up and back.

Friday, October 18, 2013

Slice of Life 1

I suppose I'll always have my early intervention notes. I guess what I was wishing for as I was looking for books at the library today is how it is living with Cedar, my toddler. I guess the part that is strange for me is having lived through this twice before and the inevitable tendency to make comparisons. We're told we shouldn't, but it's kind of an automatic process. I'm mining my past experience looking for hope, I suppose. Was my oldest this quiet? Was she this odd? When she babbled, was it the same? I didn't record very much from that time because I was so anxious about her. Am I the same? Am I hiding from the reality of it as I did for the first couple months after Cedar was diagnosed? Hekka was diagnosed at a much older age (first through third grade), because her speech was not especially delayed. I went the long way around, looking for another explanation of her deficits. And a big part of finally accepting her diagnosis was seeing the disorder in myself. So there was double the grieving process and on the heels of that, Cedar's diagnosis. And somewhere in there, Sputnik spending a lot of time in the assistant principal's office.

dys hors d'oeuvres

I had a discussion with some friends online recently where someone threw out the term aspie, and I said I didn't like the way that tries to make a cute pet name out of a disorder, and they said it was just short for Asperger's Syndrome, which the third person (who was indirectly being called aspie) said they felt was less stigmatizing than ASD. I suppose I could make a comic of it, only it wouldn't be a comic, it would be an illustration.

A: I am frustrated by an interpersonal interaction

B: The dilemma of the aspie in a neurotypical world

Me: I don't like the term aspie. It diminishes ASD.

A: I don't like ASD.

Me: Disorder means a condition that impairs function.

A: I think a syndrome is less bad than a disorder.

Me: A syndrome is actually set of problems. I don't think it's less bad.

There was probably some pictures of cats and dictators with humorous captions blended in, but that was the conversation.

Today I decided to pick up a book about ASD, Paul G. Taylor's A Beginner's Guide to Autism Spectrum Disorders and pretty quickly ran into this same concept, the desire to destigmatize disorder. It's probably a particular annoyance I have as a linguist, when people try to water down the language.

In the case of A, I probably have to grant that he doesn't have a disorder, since he was about to find a career where his qualities were an asset, attract a spouse, reproduce, and otherwise lead a functional life. He just gets into a lot of arguments with people on the internet.

We have the case of my older daughter, and I'm not sure what the argument is there. She seems pretty successful at this point and was never diagnosed, but we got her into an early reading program due to her language delay and she had one year of speech therapy during kindergarten. So she's successful, but I believe it was due to identification of a problem and early intervention.

In my own case, I feel disordered. I have married and reproduced, but I've been sadly underemployed most my life. Eta: Understanding that this was the product of a disorder allows me to feel less anger at myself. Naming the disease from self is a two edged sword. Sure it can make you feel stigmatized, but it may also frees you from the limitations of the disease if you are able to move past it. ASD may not have been the most important reason for my lack of career progress since I had MDD, but I think it definitely figured into it.

I certainly believe there are aspects of ASD that suit one better for life, such as the ability to focus and diminished impact of peer pressure. But I think there is a quantum of identity deeper than brain architecture. I suppose that makes me superstitious. 3.